Spring 2014 Update

When we started NIDA, we had big dreams of finding a cure for ME/CFS but didn’t know where to start. With our generous donors and the suggestion of our daughter’s doctor, we awarded the first NIDA grant to Dr. Sonya Marshall-Gradisnik, at Griffith University, Brisbane Australia where she was searching for a biomarker for a diagnostic tool and a potential road to treatment. The positive results from those initial studies, prompted the Australian government to fund the lab that this video shows. http://ab.co/1ncl0C1

After the 1/2 Marathon campaign that we did last year, NIDA granted the Open Medicine Institute, Mountain View, CA, over $42K towards a treatment trial that is currently recruiting 100 patients at 3 sites in the US. This is the first of its kind, and we are hopeful of the benefits that it will prove for many patients.

As many of you already know, along with NIDA, Linda is running Open Medicine Foundation (OMF) to support International collaborative research for ME/CFS and now Autism Spectrum Disorders through the Open Medicine Institute. OMF raised over $1.5 million for the first year and started 3 major research studies, one of them , collaborating with the Stanford Genome Technology Center for DNA genetics studies and another prompted by a team in Sweden. With NIDA and OMF supporters, we give HOPE to many that their quality of life will improve in the foreseeable future.

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